Ady Barkan, a lawyer, author and activist who was diagnosed with ALS four years ago, gave an impassioned speech using a speech generating device at the Democratic National Convention this past week. Barkan has been a fierce advocate for Medicare For All, sharing that "nearly 100 million Americans do not have sufficient health insurance". Barkan’s ALS diagnosis has only underscored his commitment to fight for a bill that guarantees all Americans have health Read More
Brian Barrett’s article “My Friend Was Struck by ALS. To Fight Back, He Built a Movement” shares the work of Brian Wallach who was diagnosed with ALS and tapped into a lifetime of connections to give help and hope to the ALS community. The Wired article features Wallach’s story and organization, I AM ALS. I AM ALS raises awareness about the disease, centralizes and provides key resources to the community, and creates opportunities Read More
The New York Times interviewed Rebecca Luker, a Broadway soprano, who was recently diagnosed with ALS. The performer speaks about the progression of the disease and the vulnerability that comes with sharing a voice affected by ALS. Please read the article in full, here.
As an organization dedicated to assisting people with neurodegenerative disorders by removing the barriers between them and assistive technology, Bridging Voice strives to ensure that no person Read More
The safety of our Bridging Voice network remains our top priority. With increased risk of respiratory issues associated with bacterial and viral infections, it is especially important to keep our ALS community safe and at a distance from potential harm.As we all continue to take proper precautions during the COVID-19 pandemic, our team at Bridging Voice remains committed to putting safety first and dedicated to assisting our ALS Read More
Steve Gleason was awarded the Congressional Gold Medal to honor his work as an advocate and policy change-maker for people with ALS. The Congressional Gold Medal is considered the highest civil honor and awarded by the U.S. Congress.The Steve Gleason Act of 2015 amended title XVII of the Social Security Act to allow individuals with ALS, as well as any others who have Read More
Read the full article and letter that I AM ALS hand-delivered on July 24th, 2019 to the FDA along with a petition signed by over 20,000 advocates HERE."For years, people living with ALS and additional ALS advocates have been asking the FDA to publish a revised ALS clinical trials guidance....The I AM ALS Clinical Trials Committee, made up of 15 patients Read More