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I started playing chess with Fran Farrell about ten years ago, shortly after I learned he had been diagnosed with ALS. At the time when we began playing, we were

The below essay was written by Peter Kougasian using only his eyes.  Peter was diagnosed with ALS in 2016, and resided in a care facility when he wrote this piece

STAYIN ALIVE: From Where I Sit. By. Robert E. Paulson. 2021 Call me a miracle, but I am now into my 80s and have lived with ALS (Lou Gehrig’s disease) for the past

Ady Barkan, a lawyer, author and activist who was diagnosed with ALS four years ago, gave an impassioned speech using a speech generating device at the Democratic National Convention this

Brian Barrett’s article “My Friend Was Struck by ALS. To Fight Back, He Built a Movement” shares the work of Brian Wallach who was diagnosed with ALS and tapped into a

The New York Times interviewed Rebecca Luker, a Broadway soprano, who was recently diagnosed with ALS. The performer speaks about the progression of the disease and the vulnerability that comes

The safety of our Bridging Voice network remains our top priority. With increased risk of respiratory issues associated with bacterial and viral infections, it is especially important to keep our

Steve Gleason was awarded the Congressional Gold Medal to honor his work as an advocate and policy change-maker for people with ALS. The Congressional Gold Medal is considered the highest

Read the full article and letter that I AM ALS  hand-delivered on July 24th, 2019 to the FDA along with a petition signed by over 20,000 advocates HERE. "For years,